Welcome to the SRF Patient Forum 2024
An online event for people living with scleroderma and those who care about them
Thank You for an Incredible Patient Forum.
"Collaborating for a Cure" is an online, half-day forum hosted by the Scleroderma Research Foundation that anyone can attend for FREE. This year, "Collaborating for a Cure" was held on June 3rd at 9:00 am PDT/12:00 pm EDT as part of our efforts for Scleroderma Awareness Month. Don't miss these educational sessions on symptom management, new developments in research, and your role in finding a cure for scleroderma:Informative sessions presented by leaders in the field of scleroderma research and medicine
Live Q&A following each presentation
Interactive games and activities to win prizes
Interested in becoming a sponsor for next year's forum? Contact Kate Ceredona, SRF Director of Philanthropy, at kate@sclerodermaresearch.org
Collaborators
Get to know everyone who's helping us bring the most up-to-date information directly to you.
Watch Past Forums
Can't wait for the next forum? Check out our sessions from previous years to start learning more about scleroderma now.
The SRF Forum, Scleroderma Awareness Month, and YOU
Spread Scleroderma awareness because everyone should know what this disease is and does. Want to get involved? Here are some ways to #SayScleroderma:
Share Your Story: Post a video on social media saying “scleroderma” and why awareness is important to you. Check out our social media toolkit for more ideas!
Start Conversations: Talk to your friends, family, and colleagues about scleroderma. Every conversation counts.
Add a Profile Frame: Show your support proudly by updating your social media profile picture with our special #SayScleroderma profile frame
Spread the Word: Share our #SayScleroderma social media posts and tag us (@srfcure) to help us reach even more people.
Or, send us an email at info@srfcure.org and let us know how you’ve made an impact. You can also give us a call at 800.441.CURE (2873).
About the Scleroderma Research Foundation
Our Mission
The mission of the Scleroderma Research Foundation (SRF) is to fund and facilitate the most promising, highest quality research aimed at improved therapies and, ultimately, a cure for scleroderma.
Our Story
The Scleroderma Research Foundation (SRF) was founded in 1987 by Sharon Monsky, an entrepreneur, businesswoman, and person with scleroderma. Guided by Sharon’s passion for a cure, we have become the largest nonprofit investor in scleroderma research in the United States.
The SRF research program seeks to understand scleroderma by facilitating collaboration among the world’s top scientists and medical institutions.
Introducing CONQUEST: A Highly-Innovative Platform Clinical Trial
CONQUEST is a global, perpetual, platform clinical trial developed by the Scleroderma Research Foundation in coordination with partner biopharmaceutical companies. Its goal? To accelerate the clinical development of potential therapies for scleroderma.
More specifically, CONQUEST is designed to identify potential treatments that should progress from phase 2b to phase 3 clinical trials.
CONQUEST is based on a model first created over a decade ago to accelerate oncology drug development. This international, multicenter, randomized, double-blind, placebo-controlled, phase 2b platform clinical trial is the first of its kind in rare autoimmune diseases.
Help Inform CONQUEST by Taking This Survey
What do you think about clinical trials? The CONQUEST team wants to know. This ten-minute survey will help guide future efforts of this platform clinical trial—thank you in advance for completing it.
SRF Resources
Information on common complications and treatments, participating in research, and more
Our Research
A world-class team, dedicated to finding improved treatments and, ultimately, a cure
Behind the Mystery
A special feature on the SRF, aired on The Balancing Act on the Lifetime network earlier this year
Bob Saget's Legacy
How one of the world's most beloved comedians became a champion for everyone affected by scleroderma
Stay in Touch
Follow us on Social Media: @srfcure on Facebook, Instagram, Twitter, and TikTok.
Join our mailing list to get the Scleroderma Research Foundation's monthly eNews.
