Welcome to Collaborating for a Cure, the SRF Patient Forum!
A FREE online event for people living with scleroderma and those who care about them.
Monday, June 2, 2025 • 9:00 AM PDT/12:00 PM EDT
Learn about scleroderma and connect with your community at the SRF Patient Forum.
"Collaborating for a Cure" is an online, half-day forum hosted by the Scleroderma Research Foundation that anyone can attend for FREE. This year, "Collaborating for a Cure" will be held on Monday, June 2nd at 9:00 am PDT/12:00 pm EDT as part of our efforts for Scleroderma Awareness Month. Don't miss these educational sessions on symptom management, new developments in research, and your role in finding a cure for scleroderma. This event includes:Informative sessions presented by leaders in the field of scleroderma research and medicine
Live Q&A following each presentation
Interactive games and activities to win prizes
Opportunities to connect with other attendees through the Meet + Chat tab
Interested in becoming a sponsor? Contact Anoushka Donnelley, SRF Director of Philanthropy, at anoushka@sclerodermaresearch.org
Collaborators
Get to know everyone who's helping us bring the most up-to-date information directly to you.
Watch Past Forums
Can't wait for the next forum? Check out our sessions from previous years to start learning more about scleroderma now.
The SRF Forum, Scleroderma Awareness Month, and YOU
Spread Scleroderma awareness because everyone should know what this disease is and does. Want to get involved? Here are some ways to #SayScleroderma:
Share Your Story: Post a video on social media saying “scleroderma” and why awareness is important to you. Check out our social media toolkit for more ideas!
Start Conversations: Talk to your friends, family, and colleagues about scleroderma. Every conversation counts.
Add a Profile Frame: Show your support proudly by updating your social media profile picture with our special #SayScleroderma profile frame.
Spread the Word: Share our #SayScleroderma social media posts and tag us (@srfcure) to help us reach even more people.
Or, send us an email at info@srfcure.org and let us know how you’ve made an impact. You can also give us a call at 800.441.CURE (2873).
About the Scleroderma Research Foundation
Our Mission
The mission of the Scleroderma Research Foundation (SRF) is to fund and facilitate the most promising, highest quality research aimed at improved therapies and, ultimately, a cure for scleroderma.
Our Story
The Scleroderma Research Foundation (SRF) was founded in 1987 by Sharon Monsky, an entrepreneur, businesswoman, and person with scleroderma. Guided by Sharon’s passion for a cure, we have become the largest nonprofit investor in scleroderma research in the United States.
The SRF research program seeks to understand scleroderma by facilitating collaboration among the world’s top scientists and medical institutions.
CONQUEST: A Scleroderma-Focused Clinical Trial from the SRF
The CONQUEST study is known as a platform clinical trial, which allows it to evaluate multiple investigational study drugs at the same time. It embodies a patient-first philosophy that aims to advance and accelerate clinical research and support for the scleroderma community.
CONQUEST is currently evaluating two investigational study drugs for interstitial lung disease associated with systemic sclerosis (SSc-ILD). Over time, CONQUEST plans to look at more investigational study drugs for other aspects of systemic sclerosis.
Join the quest to advance systemic sclerosis research through CONQUEST.
Consider enrolling in the CONQUEST study, a scleroderma clinical trial for people with systemic sclerosis-associated interstitial lung disease (SSc-ILD). Participants help progress research to potentially uncover new SSc-ILD treatment options.
SRF Resources
Information on common complications and treatments, participating in research, and more
Our Research
A world-class team, dedicated to finding improved treatments and, ultimately, a cure
Behind the Mystery
A special feature on the SRF that originally aired on The Balancing Act on the Lifetime network
Bob Saget's Legacy
How one of the world's most beloved comedians became a champion for everyone affected by scleroderma
With gratitude to our Diamond Sponsor, Johnson & Johnson.
