Welcome to the SRF Patient Forum 2023

An online event for people living with scleroderma and those who care about them

UPDATE! The forum has been moved to June 6th.

"Collaborating for a Cure" is an online, half-day forum hosted by the Scleroderma Research Foundation that anyone can attend for FREE. This year, "Collaborating for a Cure" will be held on June 6th at 9:00 am PDT/12:00 pm EDT as part of our efforts for Scleroderma Awareness Month.

Don't miss these educational sessions on symptom management, new developments in research, and your role in finding a cure for scleroderma:

  • Informative sessions presented by leaders in the field of scleroderma research and medicine

  • Live Q&A following each presentation

  • Interactive games and activities to win prizes


Interested in becoming a sponsor? Contact Gloria Blecha, SRF Senior Director of Community Outreach and Education, at gloria@sclerodermaresearch.org

People with scleroderma and their loved ones

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Program

View all sessions scheduled to date.

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Collaborators

Get to know everyone who's helping us bring the most up-to-date information directly to you.

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Last Year's Forum

Can't wait for this year's forum? Check out our sessions from last year to start learning more about scleroderma now.

SayScleroderma

The SRF Forum, Scleroderma Awareness Month, and YOU


Because of our singular focus on understanding scleroderma, the SRF has the most up-to-date and relevant information about complications, treatments, and related research. Everyone should have access to this information. That's why we created the SRF Patient Forum as part of our efforts for Scleroderma Awareness Month—so that you're armed with the most relevant facts about scleroderma, all while the search for a cure continues. 

Spread the word by sharing what you've learned or your story, using #SayScleroderma on social media during Scleroderma Awareness month and beyond.


About the Scleroderma Research Foundation


Our Mission

The mission of the Scleroderma Research Foundation (SRF) is to fund and facilitate the most promising, highest quality research aimed at improved therapies and, ultimately, a cure for scleroderma.

Our Story

The Scleroderma Research Foundation (SRF) was founded in 1987 by Sharon Monsky, an entrepreneur, businesswoman, and person with scleroderma. Guided by Sharon’s passion for a cure, we have become the largest nonprofit investor in scleroderma research in the United States. 

The SRF research program seeks to understand scleroderma by facilitating collaboration among the world’s top scientists and medical institutions.

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SRF Resources

Information on common complications and treatments, participating in research, and more

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Our Research

A world-class team, dedicated to finding improved treatments and, ultimately, a cure 

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Behind the Mystery

A special feature on the SRF, aired on The Balancing Act on the Lifetime network earlier this year

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Bob Saget's Legacy

How one of the world's most beloved comedians became a champion for everyone affected by scleroderma

Stay in Touch


Follow us on Social Media: @srfcure on Facebook, InstagramTwitter, and TikTok.

Join our mailing list to get the Scleroderma Research Foundation's monthly eNews.

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